Diese Literaturliste bietet eine Übersicht von Publikationen, die unsere Arbeit maßgeblich beeinflusst haben und zum Verständnis sowie zur Aufklärung über SUDEP beigetragen haben. Die Artikel bilden die Grundlage für die Texte auf unserer Webseite und ermöglichen es uns, auf fundierte wissenschaftliche Quellen zu verweisen. Die Liste erhebt keinen Anspruch auf Vollständigkeit, sondern enthält gezielte Empfehlungen für alle, die sich vertieft mit dem Thema SUDEP auseinandersetzen möchten. Selbstverständlich werden wir die Liste um aktuelle Artikel erweitern, sobald uns neue, relevante Publikationen auffallen. Wir freuen uns auch über Ihre Anregungen, falls Sie interessante Beiträge zu SUDEP und SUDEP-Prävention gelesen haben.
Hinweis: Es gibt die MEDLINE-Datenbank für medizinische Fachpublikationen, erreichbar unter pubmed.ncbi.nlm.nih.gov. Hier kann man nach aktuellen Veröffentlichungen
suchen (Stichwortsuche bspw:„SUDEP AND EPILEPSY“). Manche Publikationen sind kostenfrei im Volltext zugänglich (OPEN ACCESS), hierauf weisen wir bei den einzelnen Publikationen gesondert hin und verlinken.
Hinweis: Die Publikationen sind in alphabetischer Reihenfolge nach Autoren sortiert. Bei mehreren Publikationen eines Autors wird die aktuellste zuerst genannt. Zur besseren Übersichtlichkeit wird das Publikationsjahr vorangestellt.
(1997) Annegers, John F.
United States perspective on definitions and classifications.
Epilepsia (1997) 38 (Suppl. 11): 9–12. DOI: 10.1111/j.1528-1157.1997.tb06137.x.
Open Access:
(2015) Bellon, Michelle/ Panelli, Rosemary June / Rillotta, Fiona
Epilepsy-related deaths: An Australian survey of the experiences and needs of people bereaved by epilepsy.
Seizure (2015),29: 162–168. DOI: 10.1016/j.seizure.2015.05.007
Open Access:
(2021) Beniczky, Sándor / Wiebe, Samuel / Jeppesen, Jesper / Tatum, William O. / Brazdil, Milan / Wang, Yuping/ Herman, Susan T. / Ryvlin, Philippe
Automated seizure detection using wearable devices: A clinical practice guideline of the International League Against Epilepsy and the International Federation of Clinical Neurophysiology.
Epilepsia 62: 632–646. DOI: 10.1111/epi.16818
Open Access:
(2013) Beniczky, Sándor / Polster, Tilman /Kjaer, Troels W. / Hjalgrim, Helle
Detection of generalized tonic-clonic seizures by a wireless wrist accelerometer: a prospective, multicenter study.
Epilepsia (2013), 54 (4): e58–e61. DOI: 10.1111/epi.12120
Open Access:
(2020) Borusiak, Peter / Bast, Thomas / Bettendorf, Ulrich / Freitag, Hedwig / Haberlandt, Edda / Klauger, Gerhard / Springer, Stephan/ Wiegand, Gert
SUDEP („sudden unexpected death in epilepsy“) bei Kindern und Jugendlichen – Zahlen, Daten, Fakten.
Zeitschrift für Epileptologie 2020, 33 (4):320–327. DOI: 10.1007/s10309-020-00343-7
Open Access:
(2017) Devinsky, Orrin / Friedman, Daniel / Cheng, Jocelyn Y. / Moffatt, Ellen / Kim, Anthony / Tseng, Zian H.
Underestimation of sudden deaths among patients with seizures and epilepsy.
Neurology (2017), 89 (9): 886–892. DOI: 10.1212/WNL.0000000000004292
Open Access:
(2016) Devinsky, Orrin / Hesdorffer, Dale C. / Thurman, David J. / Lhatoo, Samden / Richerson, George
Sudden unexpected death in epilepsy: epidemiology, mechanisms, and prevention.
The Lancet Neurology (2016), 15 (10): 1075-1088. DOI: 10.1016/S1474-4422(16)30158
(2014) Donner, Elizabeth/ Buchhalter, Jeffrey
Commentary: It’s time to talk about SUDEP.
Epilepsia (2014), Oct; 55(10): 1501-1503. DOI: https://doi.org/10.1111/epi.12794
Open Access:
(2010) Gayatri, Neti A. / Morrall, Matthew C.H.J. / Jain, Vivek / Kashyape, Pawan / Pysden, Karen / Ferrie, Colin
Parental and physician beliefs regarding the provision and content of written sudden unexpected death in epilepsy (SUDEP) information.
Epilepsia (2010) 51 (5): 777–782. DOI: 10.1111/j.1528-1167.2009.02483.x.
Open Access:
(2017) Harden, Cynthia / Tomson, Torbjörn / Gloss, David / Buchhalter, Jeffrey / Cross, Helen / Donner, Elizabeth J. / French,Jacqueline A. / Gil-Nagel, Anthony / Hesdorffer, David C. / Smithson,W Henry / Spitz, Mark C. / Walczak, Thaddeus S. / Sander, Jesemir W. / Ryvlin, Philippe
Practice guideline summary: Sudden unexpected death in epilepsy incidence rates and risk factors: Report of the Guideline Development, Dissemination, and Implementation Subcommittee of the American Academy of Neurology and the American Epilepsy Society.
Neurology (2017), 88 (17): 1674-1680. DOI: 10.1212/WNL.0000000000003685
Open Access:
(1971) Hirsch, Charles S. / Martin, Dennis L.
Unexpected death in young epileptics.
Neurology (1971), 21 (7): 682-690. DOI: 10.1212/wnl.21.7.682
(2024) Kaindl, Angela M.
Der plötzliche Epilepsietod: Sudden unexpected death in epilepsy (SUDEP).
Neuropädiatrie in Klinik und Praxis 23. Jg. (2024) Nr. 1: 4-14. ISSN: 1619-3873.
Open Access:
(2018) Keller, Anne E. / Whitney, Robyn / Li, Shelly-Anne / Pollanen, Michael S. / Donner, Elizabeth J.
Incidence of sudden unexpected death in epilepsy in children is similar to adults.
Neurology (2018), 91 (2): e107-e111. DOI: 10.1212/WNL.0000000000005762
(2017) Louik, Jay / Doumlele, Kyra / Hussain, Fizza / Crandall, Laura / Buchhalter, Jeffrey / Hesdorffer, Dale / Donner, Elizabeth / Devinsky, Orrin / Friedman, Daniel
Experiences with premorbid SUDEP discussion among participants in the North American SUDEP Registry (NASR).
Epilepsy Behav. (2017), 70 (Pt A): 131-134. DOI: 10.1016/j.yebeh.2017.02.027
(2020) Maguire, Melissa J. / Jackson, Cerian F. / Marson, Anthony G. / Nevitt, Sarah H.
Treatments for the prevention of Sudden Unexpected Death in Epilepsy (SUDEP).
Cochrane Database of Systematic Reviews 2020, Issue 4. Art. No.: ND011792. DOI: 10.1002/14651858.CD011792.pub.3
Open Access:
(2017) Nashef, Lina / Leach, John Paul
SUDEP, the aftermath: supporting the bereaved.
Practical neurology (2017), 17 (6): 489–492. DOI: 10.1136/practneurol-2017-001729
(2012) Nashef, Lina / So, Elson L. / Ryvlin, Philippe / Tomson, Torbjörn
Unifying the definitions of sudden unexpected death in epilepsy.
Epilepsia (2012), 53 (2): 227-233. DOI: 10.1111/j.1528-1167.2011.03358.x
Open Access:
(1997) Nashef, Lina
Sudden unexpected death in epilepsy: terminology and definitions.
Epilepsia (1997), 38 (11 suppl): 6-8. DOI: 10.1111/j.1528-1157.1997.tb06130.x
(2020) Noe, Katherine
Balancing Safety and Independence for People With Epilepsy Under Threat of SUDEP.
Epilepsy Current (2020), 20 (5): 276-277. DOI: 10.1177/1535759720944938
Open Access:
(2023) Pallotto, Isabella K./ Shellhaas, Renée A./ Maney, Kayli/ Milazzo, Madelyn/ Grinspan, Zachary/ Buchhalter, Jeffrey/ Donner, Elizabeth J./ Lapham, Gardiner/ Stanton, Thomas/ Davis, Kelly J./ Lemmon, Monica E.
Communication about sudden unexpected death in epilepsy: Understanding the caregiver perspective.
Annals of the Child Neurology Society (2023); 1(1): 66–74. DOI: 10.1002/cns3.7.
Open Access:
(2020) Panelli, Rosemary J.
SUDEP: A global perspective.
Epilepsy & Behavior (2020), 103 (Pt B): 106417. DOI: 10.1016/j.yebeh.2019.07.018
(2020) Pensel, Max Christian / Nass, Robert Daniel / Taubøll, Erik / Aurlien, Dag / Surges, Rainer
Prevention of sudden unexpected death in epilepsy: current status and future perspectives.
Expert Review Neurotherapeutics (2020), 20 (5): 497–508. DOI: 10.1080/14737175.2020.1754195
(2019) Pensel, Max Christian / Surges, Rainer
Epilepsie, Schlaf und plötzlicher unerwarteter Tod.
Zeitschrift für Epileptologie (2019), 32: 52-58. DOI: 10.1007/s10309-018-0225-7
(2018) Pensel, Max Christian / Surges, Rainer
Plötzlicher, unerwarteter Tod bei Epilepsie: Mechanismen und Prävention.
Klinische Neurophysiologie (2018), 49: 133–142. DOI: 10.1055/a-0626-6263
Open Access:
(2018) Radhakrishnan, Divya M. / Ramanujam, Bhargavi / Srivastava, Padma / Dash, Deepa / Tripathi, Maniari
Effect of providing sudden unexpected death in epilepsy (SUDEP) information to persons with epilepsy (PWE) and their caregivers – Experience from a tertiary care hospital.
Acta Neurologica Scandinavica (2018), 138 (5): 417–424. DOI: 10.1111/ane.12994
(2016) Ramachandrannair, Rajesh / Jack, Susan M./ Strohm, Sonya
SUDEP: To discuss or not? Recommendations from bereaved relatives.
Epilepsy & Behavior (2016) , 56: 20–25. DOI: 10.1016/j.yebeh.2015.12.027
(2016) Ramachandrannair, Rajesh
SUDEP: What do adult patients want to know?
Epilepsy & Behavior (2016), 64 (PtA): 195–199. DOI: 10.1016/j.yebeh.2016.09.022
(2013) Ramachandrannair, Rajesh / Jack, Susan M./ Meaney, Brandon F. / Ronen, Gabriel M.
SUDEP: what do parents want to know?
Epilepsy & Behavior (2013), 29 (3): 560–564. DOI: 10.1016/j.yebeh.2013.09.040
(2013) Ryvlin, Philippe / Nashef, Lina / Lhatoo, Samden D. / Bateman, Lisa / Bird, Jonathan / Bleasel, Andrew / Boon, Paul / Crespel, Arielle / Dworetzky, Barbara A. / Høgenhaven, Hans / Lerche, Holger / Maillard, Louis / Malter, Michael P. / Marchal, Cecile / Murthy, Jagarlapudi M. K. / Nitsche, Michael / Pataraia, Ekaterina / Rabben, Terje / Rheims, Sylvain / Sadzot, Bernard / Schulze-Bonhage, Andreas / Seyal, Masud/ So, Elson L. / Spitz, Mark/ Szucs, Anna / Tan, Meng / Tao, James X / Tomson, Torbjörn
Incidence and mechanisms of cardiorespiratory arrests in epilepsy monitoring units (MORTEMUS): A retrospective study.
The Lancet. Neurology (2013), 12(10): 966-977. DOI: 10.1016/S1474-4422(13)70214-X
(2021) Schulze-Bahr, Eric /Dettmeyer, Reinhard B. / Klingel, Karin / Kauferstein, Silke / Wolf, Cordula /Baba, Hideo A. / Bohle, Rainer M. / Gebauer, Rainer / Milting, Hendrik /
Schmidt, Uwe / Meder, Benjamin / Rieß, Olaf / Paul, Thomas / Bajanowski, Thomas / Schunkert, Heribert
Postmortale molekulargenetische Untersuchungen (molekulare Autopsie) bei kardiovaskulären und bei ungeklärten Todesfällen -Konsensuspapier der Deutschen Gesellschaft für Kardiologie (DGK), Deutschen Gesellschaft für Pädiatrische Kardiologie (DGPK), Deutschen Gesellschaft für Humangenetik (GfH), Deutschen Gesellschaft für Pathologie (DGP), Deutschen Gesellschaft für Rechtsmedizin (DGRM).
Kardiologe (2021) 15: 176–193. DOI: 10.1007/s12181-020-00438-5.
(2018) Shankar, Rohit / Henley, William / Boland, Cailin / Laugharne, Richard / McLean, Brendan / Newman, Craig / Hanna, Jane / Ashby, Samantha / Walker, Matthew C. / Sander, Josemir W.
Decreasing the risk of sudden unexpected death in epilepsy: structured communication of risk factors for premature mortality in people with epilepsy.
European journal of neurology, 25 (9): 1121–1127. DOI: 10.1111/ene.13651
(2016) Strzelczyk, Adam / Zschebek, Gerda / Bauer,Sebastian / Baumgartner, Christoph / Grond, Martin / Hermsen, Anke / Kieslich,Matthias / Krämer, Günter / Kurlemann, Gerhard / May, Theodor W. / Mayer, Thomas / Neubauer, Bernd A. / Pfäfflin, Margarete / Plecko, Barbara / Ryvlin, Philppe / Schubert-Bast, Susanne /Hermann, Stefan / Trinka, Eugen / Knake,Susanne / Seifart, Carola / Rosenow, Felix
Predictors of and attitudes toward counseling about SUDEP and other epilepsy risk factors among Austrian, German, and Swiss neurologists and neuropediatricians.
Epilepsia (2016), 57 (4): 612–620. DOI: 10.1111/epi.13337
Open Access:
(2021) Surges, Rainer / Conrad, Stefan / Hamer, Hajo M. / Schulze-Bonhage, Andreas / Staack, Anke M. / Strzelczyk, Adam / Trinka, Eugen (Kommission „Patientensicherheit“ der Deutschen Gesellschaft für Epileptologie)
SUDEP kompakt – praxisrelevante Erkenntnisse und Empfehlungen zum plötzlichen, unerwarteten Tod bei Epilepsie.
Nervenarzt (2021). DOI: 10.1007/s00115-021-01075-3.
Open Access:
(2021) Surges, Rainer
Wearables bei Epilepsien.
Klinische Neurophysiologie (2021), 52 (01): 29-38. DOI: 10.1055/a-1353-9099
Open Access:
(2018) Surges, Rainer / von Wrede, Randi / Porschen, Thomas / Elger, Christian F.
Knowledge of sudden unexpected death in epilepsy (SUDEP) among 372 patients attending a German tertiary epilepsy center.
Epilepsy & Behavior (2018), 80: 360–364. DOI: 10.1016/j.yebeh.2017.11.036
(2020) Sveinsson, Olafur / Andersson, Tomas / Mattsson,Peter / Carlsson, Sofia / Tomson, Torbjörn
Clinical risk factors in SUDEP: A nationwide population-based case-control study.
Neurology (2020), 94 (4): e419–e429. DOI: 10.1212/WNL.0000000000008741
Open Access:
(2020) Sveinsson, Olafur / Andersson, Tomas / Mattsson, Peter / Carlsson, Sofia / Tomson, Torbjörn
Pharmacologic treatment and SUDEP risk: A nationwide, population-based, case- control study. Neurology (2020), 95 (18): e2509–e2518. DOI: 10.1212/WNL.0000000000010874
Open Access:
(2014) Thurman, David J. / Hesdorffer, Dale C. / French, Jacqueline A.
Sudden unexpected death in epilepsy: assessing the public health burden.
Epilepsia (2014), 55 (10): 1479–1485. DOI: 10.1111/epi.12666
Open Access:
(2019) Verducci, Chloe / Hussain, Fizza /Donner, Elizabeth J. / Moseley, Brian D. / Buchhalter, Jeffrey / Hesdorffer, Jeffrey / Friedman, Daniel / Devinsky, Orrin
SUDEP in the North American SUDEP Registry: The full spectrum of epilepsies.
Neurology (2019), 93 (3): e227–e236. DOI: 10.1212/WNL.0000000000007778
Open Access:
(2023) Wadle, Nora-Elena/ Schwab, Christina/ Seifart, Carola/ von Podewils, Felix/ Knake, Suzanne/ Willems, Laurent M./ Menzler, Katja/ Schulz, Juliane/ Conradi, Nadine/ Rosenow, Felix/ Strzelczyk, Adam
Prospective, longitudinal, multicenter study on the provision of information regarding sudden unexpected death in epilepsy to adults with epilepsy.
Epilepsia, (2023) Feb; 64(2):406-419. DOI: 10.1111/epi.17481.
Open Access:
(2024) Wartmann, Hannes/ Effenberger, Timo/ Klähn, Hendrik/ Volmer, Timm/ Surges, Rainer
Inzidenz des plötzlichen Epilepsietodes (SUDEP): Update und Limitationen.
Nervenarzt 95 (2024), 544–552. DOI: 10.1007/s00115-023-01595-0
Open Access:
(2019) Whitney, Robyn / Donner, Elizabeth J.
Risk Factors for Sudden Unexpected Death in Epilepsy (SUDEP) and Their Mitigation.
Current treatment options in neurology (2019), 21 (2): 7. DOI: 10.1007/s11940-019-
0547-4
(2023) Whitney Robyn/ Sharma Suvasini/ Ramachandrannair Rajesh
Sudden unexpected death in epilepsy in children.
Dev Med Child Neurol. (2023) Sep; 65(9):1150-1156. DOI: 10.1111/dmcn.15553.
Open Access:
(2023) Whitney Robyn/ Jones, Kevin C./ Sharma, Suvasini/ RamachandranNair Rajesh
SUDEP counseling: Where do we stand?
Epilepsia (2023), Jun; 64(6):1424-1431. DOI: 10.1111/epi.17617.
Open Access:
(2015) Xu, Zheyu / Ayyappan, Sujith / Seneviratne, Udaya
Sudden unexpected death in epilepsy (SUDEP): what do patients think?
Epilepsy & Behavior (2015), 42: 29–34. DOI: 10.1016/j.yebeh.2014.11.007
ILAE Guideline wearables:
(2021) Beniczky, Sándor/ Wiebe, Samuel/ Jeppesen, Jesper/ Tatum, William O. / Brazdil, Milan/ Wang, Yuping/ Herman, Susan T. / Ryvlin, Philippe
Automated seizure detection using wearable devices: A clinical practice guideline of the International League Against Epilepsy and the International Federation of Clinical Neurophysiology.
Clinical Neurophysiology (2021), 132, 5: 1173-1184. https://doi.org/10.1016/j.clinph.2020.12.009.
Open Access: